Did you know that it can take 6 months to organize your data and complete registration to a data-sharing registry? ICTS Precision Health offers expert assistance to upload your study information to databases such as dbGaP, AnVIL or others. Leverage the experience of our informatics team which includes several McDonnell Genome Institute (MGI) staff. We can help you navigate the data submission process. Complete a service request form and meet with our Program Scientist to assess your study needs.
- National Institutes of Health (NIH) guidance on informed consent and genomic data sharing
NIH-funded studies that generate large-scale human genomic data are subject to the NIH Genomic Data Sharing (GDS) Policy
- NIH Genomic Data Sharing Policy (GDS)
The NIH released a notice on Implementation Changes for Genomic Data Sharing Plans included with Applications due on or after January 25, 2023 (NOT-OD-22-198). Fundamentals of the NIH 2014 GDS policy (NOT-OD-14-124) are the same but the GDS plan elements must be included into a single data management and sharing (DMS) plan rather than a separate plan. Learn more about their policies on How to submit genomic data (e.g., Data submission and release expectations, Where to submit genomic data, and How to Register and submit a study in dbGap). Investigators working with large-scale human genomic data are required to submit an Institutional Certification to NIH. More information on WUSTL institutional certifications can be found at the HRPO Institutional Certification Request page.
- Data Management and Sharing Support through Becker Library
Becker Library has partnered with the Institute for Informatics to provide data management and sharing educational offerings and support services to the Washington University Medical Center community. The Becker Library supports a wide range of data including information specific to genomic data sharing.