- National Institutes of Health (NIH) guidance on informed consent and genomic data sharing
NIH-funded studies that generate large-scale human genomic data are subject to the NIH Genomic Data Sharing (GDS) Policy
- Creating Global Unique Identifiers (GUIDs) (doc)
The GUID is a universal subject ID allowing researchers to share data specific to a study participant without exposing personally identifiable information (PII) and match participants across labs and research data repositories. This document includes guidance on creating GUIDs for your research project.
- Data Management and Sharing Support through Becker Library
Becker Library has partnered with the Institute for Informatics to provide data management and sharing educational offerings and support services to the Washington University Medical Center community. Click the link above for more information.