Would your research benefit from linking the genetic data you collect to electronic health records? Would you like to contribute to a shared research genomics + health records database at WashU School of Medicine?
The ICTS Precision Medicine Function has developed an IRB approved protocol and consent that will permit the Institute of Informatics (I²) to link participant genetic data that you collect to the research copy of their BJC electronic health record. The goal of this standardized protocol and consent is to reduce the burden for individual researchers wishing to make progress in genomics and precision medicine, both for their teams and the wider research community. The standardized consent incorporates best-practices language for informing participants about genomics research and potential return of research results. It has been approved by the IRB for use by all WashU genomic researchers. Use of this protocol and consent as a companion to the consent for your own study will facilitate future analyses for your team and lead to a large campus-wide resource for long-term research in precision medicine. Researchers interested in using the Genomic Protocol and Consent should contact the Precision Medicine Navigator Tricia Salyer at salyerp@wustl.edu for more information. Additional details about the WashU School of Medicine Genomic Protocol and Consent, including a copy of the Genomic Consent, can be found on the ICTS Precision Medicine website.
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